Lots of firsts

Well yesterday, our Internet was down so I couldn't write about our exciting day. We were so excited about the news that our son might come home if he could just eat and poop good for a few days. When we got to the hospital they told us the first feeding didn't go so well. He threw it all up. So we were a little bummed but also realized that that was his first feeding. He's never had anything in his belly so the Dr. wasn't that concerned that he didn't' take the first feeding. So before I could give my opinion the Dr. must have read my mind. She wanted to try again and let me feed him. So I fed him (still my milk but out of a bottle) and we held him upright so he wasn't laying flat on his back in his bed. We waited a few hours and guess what.... He kept it all down. So one down and several to go before they'll let him come home. So we left to eat dinner with our cousins and came back in time for his next feeding. This one wasn't as successful but he still kept some of it down. They're starting out giving him 15 mL which is half an ounce every 3 hours. At 4 he only took 10 but he kept it all down. At spit up 5 but kept 5 down. I called this morning and all night he got down all 15 every feeding and only spit up 5. So I think he's doing better and better the more he eats. It's just gonna be a slow process. But we're happy with the progress. Hopefully now it will all come out the other end and he'll prove he can eat and poop so he can come home. Okay so for the firsts.... I changed his diaper for the first time(Most moms can't say that after their baby is a week old). I fed him for the first time. I took his temperature. The nurses are great about letting me help do some of the things I've been missing out on. So all in all it was a good day. I did take some great pictures but I left the camera by his bed so we'll have to post them later. Keep the prayers coming and maybe our precious boy will get to come home soon.

Finally some news!

The Dr. just called. He does have Hirschsprungs disease but they don't know how long the segment is. The Dr. wants them to start feeding him my milk and see how he does. If he can digest it good then they will send him home in a few days. The Dr. doesn't want to do surgery right now. He wants to see how well he does first. If he does good then it is just a short segment and surgery may not be necessary. If it's a long segment then he won't be able to digest much and they will talk about surgery sooner. The Dr. wants to see him back 2 weeks after he is discharged to see how well he is doing. So now we pray that he does well eating. She said today they would bottle feed him with my milk and if he does well today, tomorrow I can actually nurse him to see how well he does with that. So hopefully we're looking at Thursday or Friday if he does well. So pray, pray, pray that our little man can eat and poop the next few days so he can come home where he belongs. I can't wait to see him without the tube down his mouth. They are still leaving the iv in and giving him some nutrients through that because they won't give him all the milk he needs at once. They'll only give him a little to see how well he does. So we'll be down to only one iv and no tubes. Thanks for all of you who have been praying for him. Keep them coming and maybe he'll come home soon.

No news yet

I know there are several out there who check the blog for updates. So I just wanted to write and say that we haven't heard anything yet. I guess God is testing our patience because it seems like we've been waiting forever to get some kind of news. Thursday they told us it would be Friday. Then Friday they said Monday morning. Now it's 3:15 and still nothing. We just left the hospital again. The Dr. said she called the pathology lab this morning. They told her they would get the final results to her by late this afternoon or tomorrow. So one more day of waiting. I keep think he will be home with us eventually but everyday that goes by it just gets harder and harder without him here. Jared is going to have to go back to work soon. We were kinda hoping to have some kind of plan and know when Colt would be back before he had to go back to work. But I know everything will work out. A big thanks to everyone who has offered to take me to the hospital and cook us dinner and offer anything we need. Right now, it's hard to know what we need. Hopefully we'll know more when we know when we can bring him home. Also, thanks to everyone who is praying for our little guy. He always seems so perfectly content when we go see him. Right now he's usually sleeping all day and awake all night. Maybe he'll break that habit before he comes home! I didn't take many pictures today. He was sleeping so peacefully and I hated to disturb him with the flash. I'm sure in a few years, he'll be annoyed with my picture taking. If I hear anything later today, I will let
everyone know.

Another Day

I don't have any new news today but I thought I'd share some new photo's. He's doing great. I did have a "proud mama" moment today. He was crying and as soon as I picked him up and put him against my chest he stopped. It was so sweet. I felt like I was the only one in the world who could make him happy. Hopefully we'll have some more news tomorrow.

We are blessed

Today, I decided to try and think of all the positive things that we should be looking at. When we go see Colt, we have to pass by a few other babies in the NICU. There's 66 babies in the whole unit. They come from all over because Baylor has one of the best NICU units. But in Colt's nursery there's 4 other babies. The biggest one was born weighing 3lbs4oz. There's a set of twin girls who were triplets at birth. One was 1 lb3 oz and 1 lb4 oz and 12oz. Obviously one didn't make it. It is so sad to see how tiny they are and know that they will be there for a long time. So here I am so sad that they are going to keep my baby for another week or so. I can look at them and know that I really have so much to be thankful for. It could be so much worse. So I'm trying to keep my chin up and know that he will be home with us very soon. Today my parents went up there and stayed for a few hours just holding him. I'm very thankful for that so he doesn't have to be alone so much. I would sit up there all day if I could. I just know I need to be trying to heal and rest as much as possible. They took the iv out of his head and put it in his arm. He's having a hard time because he loved to suck on his hand. Now it's all wrapped up and he can't suck on it. It's kinda cute but sad in a way. I'm just glad it's not in his head anymore. He's starting to get really fussy because he's so hungry. They have an iv in him but that doesn't satisfy his hunger. Today, while I went to pump, Jared held him for a while. He said he starting screaming at Jared and it took a minute to get him to calm down. I thought it was kinda funny because we haven't had to deal with any screaming yet. I never thought I would appreciate the sound of his cry. So I came back from pumping and held him. I felt so bad because he wanted to nurse because he was hungry but he can't eat yet. Hopefully he'll be a good eater when he finally gets to eat. We stayed for a while and said goodbye for the night. He's just so perfect and precious. He's definitely going to be spoiled when he comes home. I never thought I could love something so much. I am thankful for all of you who are keeping us in your prayer. I know that I could not get through any of this without the strength from God. I'll try to take more pictures tomorrow when we go up there so I can post more. He changes so much everyday.

No definate answers yet

Well, today wasn't the best day. I had to leave my room. We had to leave the hospital without our son. It was probably the hardest thing I've ever had to do. I know that he will be fine and God is taking care of him. I just hate not having him here with me. I hate not being able to give him what he needs to make him better. I hate not being able to just pick him up because he has all these tubes in his mouth and arm. So now that I've vented for a minute, I'll try to be more positive. We did find out some news today but once again, it's nothing for sure. The biopsy they did is still being looked at. They've gone through some of it and haven't found any cells which means it's looking like he has the disease. But they still have more tissue to go through. So there's still a little hope that there will be some of the nerve cells in parts of the tissue they haven't gone through. They will be done going through the cells by Monday morning and will make the final conclusion then. Once that is made, they'll be able to decide what to do. Honestly if he has the disease, I just want to know so we can make a plan and bring him home. Of course I'd rather him not have it but if he does than we'll deal with it and do what it takes to make him better so we can bring him home. I just want my baby home with us. So that's the news we got today. I was hoping for something better but we'll deal with what we got. I know that there's a reason for all of this and God has a plan for us. I have faith that God will take care of him when his mama can't. As always, please continue to keep us in your prayers and know that we appreciate all of them.

A good day

Today has been a good day. I am starting to feel better and move around better since my c-section. Also, we went back to see Colt after the anesthesia wore off.He was more alert than we've ever seen him. Since we can't be with him all the time, we don't get to see those certain faces or noises he makes. We've never even changed his diaper. The nurses have been great at telling us little cute things that he does and funny noises he'll make. I really appreciate the nurses in the NICU because they're helping me not miss out on so many things. The nurse also said he had been pooping alot. She had to keep changing his diaper. She said that was a very good sign. The whole blockage could've been that the merconium (the tar like poop that babies have when they are first born). Sometimes the poop is so tarry that it blocks the intestine. So this morning they did this irrigation thing that was supposed to help cleanse him. Well, it's working cause he's pooped alot today. So we're not getting out hopes up. HE could still have this Hirschsprungs disease and if he does, we'll deal with it. But it would be wonderful if he doesn't have it. We would be able to take him home. We still won't take him home with us tomorrow either way. If he doesn't have the disease, they will still keep him for a few days to see how well he eats and digests it. So alot of things will be decided tomorrow. I hope they dont wait all day to contact us. We're gonna stay at the hospital as long as we can tomorrow. I think we have to be out by midnight. So please, please, please everyone say your prayers tonight that he will be disease free and we can take our precious boy home very soon! Here's a few more pictures from today.